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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Sunday, May 01, 2005

 

First Round of Accutane Down, Literally

The dryness actually seemed to improve the last few days, but we are glad to be off the accutane for 2 weeks. Friday was Field Day at school. Ryan's teacher, Mrs. Wheeler, was out sick, but I spent the day with his class, and we had a ball. I may have been more tired than Ryan! We have a clinic appt. this Thursday. We will be speaking to the docs at Sloan-Kettering in NY about a new treatment for Neuroblastoma. Les added the link to learn about the monoclonal antibodies. This Friday is Relay for Life, and Ryan will be walking the Survivor lap and selling lemonade. A schoolmate's grandfather made him the lemonade cart. He associates the "survivor" lap to the Survivor reality-TV show. They have made that the theme at school. The school has divided into two tribes and are having a penny war. This past week they raised over $1700!! The kids are so excited about it. Ryan's Taniki tribe is in the lead. Unfortunately, Will is on the other team, ugh!
It seems that Will's soccer season will never end. Every other game is rained out and is rescheduled at season's end. Heidi's team has had better luck with the weather. We are looking forward to a day around the pool today just relaxing and having fun together. These are the days we enjoy the most and the days we want more of. Please keep praying for Ryan's cure.

# posted by Ryan @ 5/01/2005 09:51:00 AM
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