- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Sunday, November 28, 2004
Getting sicker :(
Saturday afternoon and Sunday have been rotten for our little buddy. He is not eating. When he is not throwing up he still feels very sick. At least he does not have to take the 3am baths anymore (until the next round). He is already really missing Heidi and Will. It's going to be a long road for Ryan. Everyday feels like a week.
Saturday, November 27, 2004
Doing well
Ryan has 4 days of chemo under his belt and is doing very well. He has only been sick once a day and we can expect that to continue until Tuesday when this round ends, he'll have one day of rest then on Wednesday they will transplant his stem cells. The staff here has been great but it sure would be nice if Heidi and Will could visit him. He's not happy about having to stay here so long. We did get a couple of videophones so they can see each other on TV, cool. They like to make faces at each other!
Remember the Spaghetti Supper at the Bethlehem Methodist Church on Tues. Dec. 7. Tickets are $5.00 and can be purchased at First Piedmont Bank in Winder or you can email Deanna Shoemake at dshoemake@georgiafundingnetwork.com Plates will be available for pick-up or dine in from 5:30 until 7:00.
Thank you, Thank you, Thank you to Deanna and all our FORM friends.
Wednesday, November 24, 2004
Finally Checked In
We arrived at Egleston at 7:30 this morning, they whisked us through and had us in our room (359) by 7:50. After unloading suitcases, TV, refrigerator, games, Christmas decor and so on, we ordered breakfast, were visited by a myriad of staff, then started chemo at 10:30. There's no fooling around here, a tight schedule. Ryan's first drug cocktail requires a bath every 6 hours, (middle of the night baths are going to be tough!).
Monday, November 22, 2004
The transplant date is confirmed
Ryan's check up today at Egleston went smoothly, just a cough and nothing else. Tara called this afternoon with the check in date of Wednesday morning. We may need some additional manpower moving in!! Wish Ryan luck and keep him in your prayer's, for we feel he is going to be quite sick. :(
Les and Missy
Sunday, November 21, 2004
A Slight Delay
We won't be starting Ryan's transplant for a day or so. We've had some delays with our insurance company and Ryan isn't really feeling that great anyway. I am taking him in on Monday to see the doctor. He has had a terrible cough for several days. We will keep you posted when we know something.
Spaghetti Supper sponsored by FORM
There will be a Spaghetti Supper at the Bethlehem Methodist Church on Tues. Dec. 7. Tickets are $5.00 and can be purchased at First Piedmont Bank in Winder or you can email Deanna Shoemake at dshoemake@georgiafundingnetwork.com Plates will be available for pick-up or dine in from 5:30 until 7:00. Many, many thanks to Deanna and all our FORM friends.
Friday, November 12, 2004
Working on Nanny and Granddaddy's 50th anniversary surprise. What a great time !!
Monday, November 08, 2004
2 Weeks and Counting
Ryan's admission for his transplant is set for Nov. 22. Even though we will be there for Thanksgiving, we are really hoping he will be home for Christmas in between transplants. He had another pre-admit eval. today at Egleston. Everything looks good and ready. We got to tour some of the rooms and saw a few familiar faces from Scottish Rite. We are learning a little of what to expect when we get to the transplant unit. Visitors will be severely limited and no flowers, fruit, or stuffed animals. Your calls, e-mails, and prayers will be more than welcomed, though!!! Thanks so much for your well wishes and support, Les and Missy
Thursday, November 04, 2004
Ryan's newest friends
Tonight was the first meeting of FORM (friends of Ryan Morgan). Several moms and teachers from school got together to find ways to help our family as we go through the next few months. They are planning a delicious Thanksgiving dinner for us and have a direct link to Santa's workshop. We are going to firm up a date for a Spaghetti Supper at Bethlehem Methodist Church in the next few days. Thanks to each and everyone who attended for reaching out to us and working to make things easier for our family. Ya'll are a special group. Love, Les and Missy
Ryan and Matt on the class field trip to Stone Mountain
Wednesday, November 03, 2004
PreB.M.T. C.T., MIBG----A.O.K.!!!
That's a lot of abbreviations. Ryan had his CT scan yesterday and a full body scan today. Everything looks fabulously clear. He has a full day planned next Monday at Egleston. He is going to see the Gladiators play hockey on Friday with Will and Dad. His Gramma is coming next week to stay with us while he is in the hospital.