- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Tuesday, November 29, 2005
One Year, Already?
Just a quick update today. Will and Ryan are about to get home from school. Ryan is doing good in spite of his cough and congestion. We are working hard with the meds to keep it at bay. We had a wonderful Thanksgiving at my Mom and Dad's and then again with the Howards and the Butterfields. The picture is of Ryan and Lauren Howard McSwain. We missed Pat! Ryan goes back for a clinic visit on Thursday and will have his hearing re-checked. It is becoming more noticeable how much he isn't hearing quite right. He spelled one of the words on his spelling pre-test 'guys' instead of 'skies'. A high frequency hearing loss will affect sounds 's', 'f', and 'th'. He told me about -otosynthesis a few weeks ago. We are going to make a quick run by Egleston to take some treats. It will be the one year anniversary of Ryan's first stemcell transplant. We've come a long way, and don't ever want to go back. Please say prayers that Ryan's scans will be clear next week. We are looking forward to the Lighthouse Christmas party this Sunday. We hope to see many friends. Thank you, friends, for keeping a check on us and for praying for Ryan. I wish you all could know his spirit and his spunk. He has been such a gift to us. Love, Les, Missy, Heidi, Will, and SuperRyan
Thursday, November 24, 2005
Words cannot express how thankful we are this year. What a difference a year makes. Last Thanksgiving we were at Egleston having high doses of chemo. We are thankful to just be at home together, for Ryan's good health, and for all of your love and support. We are thankful to hear good news from some of our cancer buddies, too. Little Jacob will be home and Mary Evelyn's stem cells are free from cancer and her surgery went great!!! We are thankful for everyday all of us have with our children. Please pray for the Wilkins family as they have been celebrating the end of Catie's treatment for a brain tumor, but something has shown up on her MRI. You can find links to all of these sites in recent entries. This picture was made Monday at Ryan's classroom Thanksgiving Feast. He made me a beautiful turkey centerpiece. We will be celebrating at my Mom and Dad's later today, and will be getting together with our Lighthouse friends tomorrow and Saturday. The kids are jazzed about that. We hope that each of you have a very blessed Thanksgiving with your families. Thank you so much for continuing to love and care about our little superhero. Love, Les, Missy, Heidi, Will, and SuperRyan
Sunday, November 20, 2005
Is that a poker face, or what?
And so goes the roller coaster, at least the dips aren't as low and scary as they used to be. Ryan feels great with only a mild cough and runny nose for a few days, and then he will have a few days where he can't seem to stop coughing. On Friday, he got to see his Winder Barrow High Cheer Dog friends. They are an awesome group on and off the mats. He maneuvered an overnight at Matt's last night. He probably does more to set up his social schedule than any of our kids!! He has a birthday party tonight at an indoor pool. I know that will be lots of fun. Dad is going to his class' Thanksgiving Feast tomorrow, which is very special for Ryan. I am so looking forward to a short week. We are excited to be having the Howards here next week for a visit, and hopefully, the Butterfields. We miss our Lighthouse friends. Ryan's next set of scans is getting closer, and we feel the stress of that creeping in more everyday. Please continue to pray that the scans will show with certainty that there are no cancer cells anywhere, especially his liver, where something has shown up the last two scans. And please pray for little Mary Evelyn who will have her surgery this week to remove her tumor. We are going to try and go down to visit them and offer any support we can. We hope you all have a wonderfully blessed Thanksgiving. This will be a special day for us since last year we couldn't be together. Ryan was at Egleston for his transplant. Thank you so much for checking in on us and for your relentless prayers for Ryan. We just couldn't make this trip without ya'll. Love, Les, Missy, Heidi, Will, and SuperRyan
Thursday, November 17, 2005
Sunday, November 13, 2005
WE ARE THE CHAMPIONS !!
Everyone here on the homefront is doing well, except for the colds that are circulating. No big deal. The really big deal was Will's soccer team. After clinching the Division II Championship, they moved onto the Kohl's America Cup. Yesterday, we saw two very physical games. We won the first and tied the second. Will was very excited to go back this morning, and they easily won the first game securing a position in the final game. It was incredibly tense and exciting. The game ended in a 1-1 tie and Will's team finally took it in double overtime. I haven't seen so many boys this happy in a long time. They should be really proud of themselves. They have worked so hard all season and deserve this win. They have decided to end the season on this great high and will not be going to Savannah for the tournament there. It works out great for us because we will be able to see all our friends at the Lighthouse Christmas party that weekend. We took the kids to the Gwinnett Gladiators hockey game on Saturday night. They love chucking their puck and eating Dippin' Dots. We would go just about anywhere to get Ryan to eat ice cream. :) Thank you so much for checking in on us. Hope you have an awesome week with your families. Love, Les, Missy, Heidi, Will, and SuperRyan
Where's Waldo (Ryan)?
Wednesday, November 09, 2005
Happy Birthday, Henry
soccer teams raised $300. We are so appreciative of our coaches and all our generous parents. Will is very excited about their tournament in Stone Mountain this weekend. Heidi and Ryan are excited to not be going :0). They will spend the day Saturday with their friends, and they may go Sunday as it may not be such a long day. Thank you all for continuing to think of us and to pray for Ryan and his friends. They need you and we need you, and we feel so fortunate to have so many who care and who ask God everyday for Ryan's cure and good health. Love, Les, Missy, Heidi, Will, and SuperRyan
Sunday, November 06, 2005
Is it almost Monday?
They could really use some encouraging words. Hope you have a great week with your families. Love, Les, Missy, Heidi, Will, and SuperRyan