- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Monday, October 31, 2005
Our Adorable Hobgoblins
Does anyone see the slight resemblance in Ryan in his costume and how he looked during his transplants? :) The kids had a great time trick or treating tonight, but I think they had more fun scaring all the trick or treaters that came up the sidewalk. When we left there had been well over 500 kids come by. Will had a good visit at the pediatrician's office. I just knew he had strep throat, but not!! He had a great time making fun of me walking in my beautifully fashionable boot. It was great to be able to get out and move around a little. My foot really doesn't hurt anymore, but that boot is heavy!! So we are all looking forward to a normal day tomorrow. Ryan's last soccer game is Thursday and we will have a little party afterwards at The Sweet Tooth where all the kids will get their awards. I know he is looking forward to that. Thanks for checking in on us and for your prayers. Your support means so much to us. Love, Les, Missy, Heidi, Will, and SuperRyan
more halloween pics
Let me start by telling you about Ryan's clinic appt. last Thursday. It was surreal when we got off the elevator and the waiting room was completely empty. Well, not completely empty, Kellie Porter was there waiting to see us. CHOA and Aflac are so very lucky to have her working for them as are we. She is so determined to raise lots of funds for the hospital and for cancer research. She stayed with us during Ryan's appt. and kept us company during the down times. Normally, there is a lot of down time waiting for this or that, but not this time. Although, it is great to usually run into someone we know and can catch up with, it was awesome to see the clinic empty. I imagined that this is what it will be like when we have found a cure. Unfortunately, it was only empty because so many of the staff are gone to a conference. He had a good visit with Dr. Anderson and Dr. Rapkin. Something about Dr. Rapkin brings out the little devil in Ryan and a life to him when he is the sickest. It is amazing how great he is with all the kids. Ryan's counts are good, and we should hear on the catecholomines today or tomorrow. We went on for the audiology appt. even though we knew he, more than likely, still had fluid in his ear. Well, we found out he has fluid in both ears. Dr. Anderson feels it is probably viral, but we are to stay the course with our antibiotic. The audiologist went ahead with the eval., but we had to stop before we got finished. Ryan just didn't feel well, and became upset and frustrated. His hearing seems to have gotten considerably worse, and I know it was difficult for him to try and listen so intently and still not be sure if you heard the beeps or not. We are going to try again Dec 1. So we are off of clinic trips for the whole month of Nov. Hooray!! Hopefully, when we go back, his ears will be clear and we can get an accurate evaluation of his hearing. We carved our pumpkin last night. Heidi did an awesome job drawing his face. Les took the kids to a spook house last night in Athens put on by the Athens Creative Theatre. They had a great time. Today is Book Character Day at school, so Ryan wore his clone trooper costume. I hope his teacher remembers that Star Wars is a book, too. Will is home with me, and we are going to see the doc when we can get an appt. We are going to toast our pumpkin seeds and make our pumpkin cookies, if we can find a pie pumpkin somewhere. The kids are very excited about Trick or Treating tonight. We will go to my brother's house in historic Statham. It will be fun for me just sitting and watching all the kids come by. Thanks for checking in on us, and please continue to pray for Ryan. Love, Les, Missy, Heidi, Will, and SuperRyan
Saturday, October 29, 2005
Ryan has been feeling really good the last 24 hours so maybe he has kicked it. Ears and eyes seem a lot better. It sure is nice to see him laugh and play!
I have two more under the weather though. It seems Will has a touch of the flu and Missy had surgery on her foot yesterday so she can't walk. Her pain killers make her pretty nauseated so she may stick with the regular over-the-counter stuff. She will be in a walking cast for 4-6 weeks but this first week is going to be pretty tough on her. It doesn't take much for us mere mortals to be brought to our knees when we're sick so it gives us a true perspective of the battle our SuperRyan has waged over the last year and a half! He made it through unbelievable treatments, pain, and anguish with attitude and will of a warrior. We are so proud of him. His mental discipline is a perfect fit for his latest sport, Karate. He sure loves going... the outfit is a big plus also! Love Les, Missy, Heidi, Will and SuperRyan
Tuesday, October 25, 2005
Back to the Pediatrician today
Goodnight and God bless.
Monday, October 24, 2005
Gearing up for BOOOO-day!
Sunday, October 16, 2005
Thank you, Cure, for a great day!!
We all went to Six Flags today as guests of the CURE Foundation. This is a once a year celebration for all children that were stricken with cancer and have completed their treatment. What a crowd!! Ryan walked the whole day, we couldn't believe how his stamina is coming back. We saw a few familiar faces. It is always so great to catch up with families in person. Ryan's first ride of the day was in the front seat of the Scream Machine. He was smiling and laughing the whole time. He won this beautiful blue crocodile and named him "Croca-naga". He has such an imagination. We hung on in the park till about 6 and decided we could go no further (well, mom and dad). We have a busy week ahead with awards nights at their schools, soccer games, and a re-check at his pediatrician's. The kids brought home some excellent report cards last week. We just couldn't be prouder of them. Ryan starts Karate tomorrow. He is so excited. Soccer will be over in a few weeks :( Heidi and Will are signed up for basketball, but Ryan has wanted to do Karate for years. I wish we had a couple of weeks before it started, but we don't have any control over that. We are collecting donations for Coaching for the Cure for all three soccer teams. We are so thankful that our coaches are more than happy to participate in such a rewarding cause. Can you imagine what they could do if every little league team in the country participated just once? What a thought!! Well, we hope ya'll have a great week with your families. Thank you so much for your prayers for our family and Ryan. Love, Les, Missy, Heidi, Will, and SuperRyan
Wednesday, October 12, 2005
Test Drive a Volvo...
Sunday, October 09, 2005
SATURDAY NIGHT no FEVER
Ryan hasn't had anymore pain in his ear or fever. His appetite is better, too. The kids headed back to school this morning and Ryan has two soccer games this week. The pictures are from Saturday night in the garage when we got out our Halloween decorations (after Georgia kicked Tennessee's butt!). Les and the boys were practicing their best moves on the karaoke machine. I wish you could have seen them. Ryan has a 6 month check-up with Dr. Marcus at Emory today. He is looking forward to driving his r/c Hummer in to see his old buddies. As we have been throughout this journey, we are thankful for all the nurses, techs, docs, and everybody that really strive to reach out to Ryan and all his little friends and make their hospital days more fun. And, thank you to all of you for checking in on us. Hope you have an awesome week with your family. Love, Les, Missy, Heidi, Will, and SuperRyan