- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Tuesday, January 29, 2008
Hangin' in there.
Ryan had a good checkup today with Dr. George. He is starting week 2 of the three weeks of chemo. It doesn't seem to slow him down. He got an excellent report card yesterday. He was really proud of himself.
We haven't learned a whole lot more about the pathology report, except that there was no skin involvement. We had been a little worried about that earlier on. I have had one of the drains removed, and another one is ready to be taken out, but I am not looking forward to that. It hurt like heck getting the first one out. I have an appt. to go back to Emory to Dr. O'Regan on the 11th and will get all the answers then. Thanks for checking in on us. Much love, Les, Missy, Heidi, Will, and SuperRyan
Friday, January 25, 2008
One step forward, Two steps back
Sunday, January 20, 2008
Check that off the list.
Thursday, January 17, 2008
Our Super Patient update
We have been completely spoiled by Ryan's nurses and the administration at Egleston and Scottish Rite but I feel all patients and families deserve the same treatment no matter what hospital you are at. I certainly expected more from Emory. So it is the morning now. Karen made it home safely through the snow at midnight and I was back in the room by 1am. Missy rests comfortably while the morphine and Percocet are working and she's sleeping. She is supposed to get up shortly to walk a little and have something small to eat. I can't believe it but they say she might go home tonight, possibly in the morning. Thanks for all your calls and emails. I have shared your sentiments with her although she was still pretty fuzzy!. She should be able to talk on Friday. Many thanks again, Love Les, Missy, Heidi, Will and SuperRyan
Tuesday, January 15, 2008
Good news and not so good news
Wednesday, January 09, 2008
We are thrilled to report that Lunch for Life (The Christmas Giving Trees) raised a little over $250,000.00. That brings their grand total to $1,163,536.23 for neuroblastoma research. Thanks again to everyone who bought ornaments.
Ryan got a special surprise from his buddy, Morris, at the hospital. He made Ryan his own employee badge (as he is always stealing everyone's). We will post a picture our little "Chief of Doctors" soon.
Thank you all for your prayers for us. Please say a prayer for our friends, Taylor and Maddie. Taylor's family is going through what parents should never have to, and Maddie has scans this week. We will post pictures next week from our trip. Love, Les, Missy, Heidi, Will, and SuperRyan
Sunday, January 06, 2008
Happy New Year!
You can see who managed to stay up and ring in the New Year. Will's buddy, Jackson, celebrated with us, and Heidi had quite a few friends over, too. It was a quick holiday. We had to go back to school on the 2nd. It was nice to sleep in everyday and get some rest. We took in a movie or two and the boys got to go shoot paintballs. How do you like our new car tags?? There is a link on the left of this site where you can order your tag ( any state). We are excited about raising more awareness of pediatric cancer. Ryan seems to be doing ok on his oral chemo. He did get a sandpaper-like rash on his arms, legs, and back. It itches occasionally. He has a check-up on Tuesday at the clinic. After this week, he will get a week off the meds, and then we repeat the cycle over and over again. Please pray that it is working .
Les and I are sneaking off on Thursday for a little R & R. We are taking a cruise to Cozumel. We are really looking forward to it and really need it. I have been feeling better. Food finally tastes good and I was able to go for a pedicure today. That was a major accomplishment! We'll get back just in time for my pre-op. As much as I am dreading the surgery, I am really looking forward to getting it over with. Please pray that it goes well and that the chemo has killed all the cancer.
Thanks for checking in on us and thanks for your prayers. A friend of ours could really use your prayers, as well. Please pray for Taylor and her family. They are having a rough time right now trying to control her pain. We hope that 2008 holds much happiness and good health for all of us. Love, Les, Missy, Heidi, Will, and SuperRyan