- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Monday, January 17, 2005
Hopefully, this is the last bad week
Normally, kids start feeling better around Day +10. Today is Day +4 for Ryan. He is on 2 antibiotics, an anti-viral, an anti-fungal, pain meds, nausea meds, itching meds, tylenol, and, occasionally, lasix. It is hard to keep up with it all, but it is still less than last go-round (so far). Last time we went to ICU on Day +7, so we still have a ways to go. His white count has been <.1 for a couple of days now. He starts his Neupogen tomorrow to boost the production of blood cells. It will be so great to watch the numbers go up and Ryan start to feel better. He slept most of the day yesterday, and then woke up around 10 pm and walked 8 laps, in full Darth Vader gear, including his boots. I will post a picture of that later when I go home. We are buying a digital camera, finally, with our Christmas money. That will make posting pictures so much easier and quicker. I forgot to tell you what he said just after his transplant last week. He said he didn't like that transplant, it made sparks go off all over his body. That's what he feels when his foot or hand goes to sleep, sparks. His very quick and sweet nurse, Dawn, told him those were the fireworks going off in his body to celebrate the return of his stem cells and his getting well. This time she made me want to cry. Thank you all for your prayers and support. Please keep praying for total healing. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 1/17/2005 09:53:00 AM
: 7:59 AM