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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Thursday, July 21, 2005

 

Some new ways to help find a cure

I hope all of you were as enfuriated as we were after reading the article in yesterday's USA Today. It is so sad that it all comes down to money. I wish they could know Ryan and all the wonderful kids we have met over the last year. We have to find a way to let them know these kids and get more new drugs made for children. There are two new ways to help, though. Hayley's mom and dad have been working hard with Cure Search and have officially opened registration for the Cure Search Hayley Thomson Challenge which will be at the Cherokee Country Club in November. I have received some brochures, and it looks like its going to be a great golf tournament. Please check out the website at www.curesearchhayley.golfreg.com. I can't begin to imagine their pain of watching Hayley endure her treatment and then losing her. but we are so thankful of their efforts to raise funds for pediatric cancer research.
Cure Search is finally offering the green wrist bands in youth sizes now. Ryan has been wearing one around his ankle, so he was glad to hear he could get a smaller one.
Cure Search is also planning a luncheon for Moms of kids with Cancer in September to help raise funds for research. The website for that is
www.quietheroes.org . Two well known cancer moms will be speaking, Lance Armstrong's and Alex Scott's. You know Lance, but you may not know Alex. She was a little girl who passed away Aug 1, last year. She fought Neuroblastoma for about 8 years and held lemonade stands to raise money. Now they have lemonade stands all over the country and are close to reaching the 1 million dollar mark. You don't have to be a mom of a child with cancer to attend the luncheon, and you can sponsor a cancer mom.
On a sidenote, Ryan's article was supposed to be in today's AJC, but it has been moved to Sunday's paper. According to Jena's mom, they fell in love with all the kids and wanted to move it to Sunday, which is great, because many more people read the Sunday paper than any other day. Maybe some of the pharmaceutical folks will check it out. Thanks for checking in on us. We are off to Tifton (yes, below the gnat line!) this afternoon and will be back to see our LightHouse Family Partners, the Howards, on Sunday. The kids can't wait to see Meredith and Patrick. We are looking forward to hearing Clay speak at their church at Northpoint. One more week and it is back to school, ugh!! Ryan's 7th birthday is next week so we will have another Star Wars celebration on our hands. His scans have been scheduled for August 8, 9. I am dreading it already. Please keep praying for him and all our little friends. There are so many. Love, Les, Missy, Heidi, Will, and SuperRyan

Guest Book:
Hey Ryan! It looks like you have had a super busy summer! Sounds like the cruise was fun and you had a great time at the beach too! I have missed seeing you this summer! Tell your family I said hello. I am glad you are doing well. I have continued to pray for you all summer! Way to go! on the swimteam.
I hope you have a happy birthday coming up and I look forward to seeing you when we get back in school. Please come by and visit when you can.
Love, Mrs. Wheeler
 
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