My Photo
Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Saturday, July 30, 2005


Summers over :(

Ryan's standard monthly appointment was just that, standard. All counts are in the usual ranges for Ryan at this time. We should get the catecholamine results on Monday. Ryan's were 300 when diagnosed and now, are less than 5. This test is the most telling for us laymen! Ryan will be scanned with CT and MIBG on August 8th and 9th. We are also having a blood sample sent to a lab in Canada for a "TH Test". This test has been used to show the probability of a neuroblastoma relapse. If positive for relapse, it's accuracy is about 80%. If negative for relapse, the accuracy is about half that. I believe the results will help with future decisions we may need to make down the road as far as trial therapies for Ryan.
We have just wrapped up his birthday party with all his friends. We had a 10:30 start for a pool party/food fight party. They had a blast. Missy made spaghetti, jello, and marshmallows. Messy, yet amazingly clean in a strange way. After a month of 90 plus, it rained during the party. The kids didn't miss a beat though. It just made it all the more fun! Most have left, but about 8 are still burning around here playing starwars with their lightsabers. The kids all got to visit their new schools and teachers this week. They are very excited to be starting on Monday. We are hoping and praying for a complete year at school for Ryan (Heidi and Will too !) and we hope he can handle the 2nd grade work without becoming overloaded. I'm sensing lots of homework in our future! We also have soccer starting. Will started today and absolutely loved his new team. Heidi and Ryan will start in the next week or so. Ryan's Dr. said his bones are good to go as far as strength, he just needs to recover his stamina. Thanks again for keeping a eye on our little buddy, and if you can, share some strength with Ethan and his family in his guest book. They are traveling down an absolutely devastating path with tremendous courage and conviction. They are filling Ethan with as much love and joy as he can absorb. Les, Missy, Heidi, Will and our Super seven year old, Ryan.

Guest Book: Post a Comment

<< Home

This page is powered by Blogger. Isn't yours?

+++++++++++++++++++++++++++++++++++++++++++++++++ Add things to your sidebar here. Use the format:
  • Link Text
  • +++++++++++++++++++++++++++++++++++++++++++++++++