- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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When will this air horn run out of air? Ryan played all day Sunday with his friends, Max and Rachel. I got a call about 10 this morning that he was in the clinic with a bad headache. We are very lucky to have so many friends at school. When I got down there he was in the gifted teacher's room (Max & Rachel's mom) on a beanbag. As a precaution, he had been whisked out of the clinic because of the numbers of sick kids in there. He was happy to see me and I think just trying to finagle a lunch date. I know he was feeling fine after he, Matt, and I had enjoyed our yummy school lunch. I am starting back to work only 12-15 hours a week, and he is none too happy about it. I don't think he will really ever know I am gone, as he will be at school. He will be out of school all day tomorrow for his CT Scan and MIBG injection. He got down the first dose of iodine pretty easily this morning. Who knows? Maybe his headache had something to do with taking iodine, bactrim, and accutane all at the same time, though I am certain this isn't the first time it has happened. We did learn something promising about the Accutane Saturday while visiting with other cancer mom and dads at Ethan's funeral. Gwen's mom and dad were asking Dr. Rapkin if the medicine might make her irritable. Caroline's mom and dad thought it did, but we had chalked Ryan's irritability up to all the chemo, general tired of being sick, and a somewhat irritating older brother. It would be so great if it were due to the meds. That means that in Sept. it will go away!! That would be so awesome. Well, I doubt we will get any results tomorrow, but I will post as soon as we know something. Please pray that Ryan's cancer is truly and definitely gone, and nothing shows up on the scans. thanks, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 8/08/2005 08:13:00 PM
