- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Thursday, September 29, 2005
Counts are good, and he feels good
Ryan impressed Drs. Anderson, George, and Rapkin today at the clinic. His counts are relatively good. His platelets are down a little, probably due to fever. I can't tell you how many times I heard "fevers eat platelets" over the last 15 months, and that a rise in your white count means your body is probably fighting something. So we had both, but his hemoglobin is the same as last month and everything else looks great. Even this far out of transplant, his marrow is still recovering. We will get the catecholomine numbers early next week. All the docs pretty much agree to re-scan in 2 months. They will start with a CT and MIBG and see how it looks to decide if we want to redo the PET or not. Les and I feel good about that. So long as he feels great we don't want to do anything more invasive at this point. No fever today, and if that continues we will head to Family Camp at Camp Sunshine tomorrow afternoon. Ryan has been counting the days, so please say a little prayer that he gets over this virus and has no more fever. Thank you all for your love and support. Your kind words really got us through this terrible scare. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 9/29/2005 09:54:00 PM
