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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Wednesday, December 07, 2005


Good News!!

Hi Friends!! We got a call just a bit ago from our nurse, Erika. She said the CT was clear. No report on the MIBG as of yet. This is big for me. At lease if the CT remains clear, it could still be something other than cancer on the MIBG. This morning was rough watching the MIBG as it put together a composite picture of Ryan's entire body. It didn't look much different from the last to Les and I, but we certainly aren't experts at reading it, yet anyway. :) I just wanted to get out of there as soon as possible before some doc had a chance to walk in and drop a bomb of bad news. I am trying hard to be optimistic, but it is just so frightening when you're talking about cancer in your child. I just want it to go away and leave him alone. I want him to have a regular life full of regular kid stuff. We worked on his homework for a while, made a very cute reindeer, and his Dad took him to karate. That kind of stuff just fills me up. I will post the MIBG results tomorrow when I get them. Thank you all so much for your prayers for Ryan. Please continue to ask God for Ryan's cure here on Earth, here with all of us that love him so much. I keep meaning to tell you about Lunch for Life. It is a great program started by moms and dads of kids like Ryan. The idea is that everyone gives up lunch for a day and sends in the cost of your lunch, $5, to fund research for Neuroblastoma.
If you visit you can donate in Ryan's honor. You can even donate through Paypal. How easy!! All of the kids have little Christmas trees and they get ornaments on their trees when donations are made. We always try to support the different Cancer organizations, but this one is particularly important. All of the money raised goes only to Neuroblastoma research. I hope to post with more good news tomorrow. Love, Les, Missy, Heidi, Will, and SuperRyan

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