- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Saturday, January 21, 2006
Looking for Answers
Let me catch you up on our past few days. We heard from Erika on Thursday about Ryan's catecholomines. The one that had risen to 10 last month was back down to 4.8 (yahoo) and the one that was 7.9 came down to 7.0-both in the normal range. As much as we discount the value of these numbers, we sure hang to them when we need them as a positive sign of Ryan's health. I haven't posted just hoping I would get some answers first, but we don't have anything yet. Ryan started complaining of his chest hurting when he took a deep breath Thursday night. It was worse Friday morning so we went to the pediatrician. His lungs sounded good and his bloodwork was normal. We had a chest x-ray at St. Mary's which I thought was going to be a little un-nerving, but thank Goodness they have renovated the front of the hospital, and it didn't even look the same as it did when Ryan first got sick. The x-ray was normal. We had a good breakfast/lunch at IHOP, and he felt well enough to make a trip to Party City to spend some of his Christmas money. Thus, the picture. He went Gothic on me. He also got a bamboo cane, which he was extremely proud of because it was "real wood", a Zorro sword, and a voice changer so he can sound like a monster or an alien. He felt pretty good most of the afternoon and started feeling bad again around dinnertime. He started complaining of his stomach hurting, and has been nauseated, but hasn't gotten sick. He kept a sharp eye on his cinnamon donut this morning, and even took it with him to the dr's hoping he would feel well enough to eat it. Les called and said he ate about half on the way to St. Mary's, keeping the other half just in case he threw up. Now that's what I call strategic donut eating. He keeps his "Fear Factor" bucket close by. Our pediatrician sent them back to St. Mary's for an influenza test, since Ryan had his shot in Dec. That, too, came back negative. He has perked up since then, though. I know he is troubled by this pain, and is worried. He asked me the other night why Alex' cancer never went away, and he and Will asked about Ethan. I didn't feel I had too much choice, but to tell him about Ethan's passing. I don't want to frighten him or worry him, but I want him to know that he can always trust our answers. So please, stop what you are doing and pray that: a) we get some answers to what is causing him to feel bad, b) that it is something we can treat and resolve quickly, and c) for Ryan not to worry. Love, Les, Missy, Heidi, Will, and SuperRyan
He can lick this..prayer does work. LOL cousin Janet in Canada.