- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Ryan finished up round one of his chemo yesterday at the hospital. After playing Gallaga all day Friday, he took it easy yesterday and watched movies with his Dad. He has had a few bouts of nausea, but hasn't really gotten sick. We are managing it with phenergan. He was happy to get rid of the line hanging out of his chest. I'm not sure he even knew when his nurse took it out. Dr. Lew came by and gave Les the news of Ryan's bone marrow aspirates. Initially, he told him the marrows were clear, but came back 15 mins. later to say that it was only clear on one side. We have learned to brace ourselves for any test results, but that was pretty disappointing after thinking they were clear. We will just have to hope and pray that they will be clear after this round of chemo. Many of you have asked about Heidi and Will and how they are doing. They both played soccer yesterday. Heidi is blessed with many girl-friends, and they have been a great support system for her. Will, on the other hand, just would like to be blessed with many girl-friends. :) He is our little "open-book" and doesn't hesitate to let you know what is on his mind. We are trying to keep our routines going. We have always believed that kids do better when they can plan and predict their daily activities. Our routines are comforting and reassuring that we are making it. We had a campfire last night-one of Ryan's favorite things to do. He had a great time with lots of kids and smores! Thanks to everyone that came to play. He will be playing with his buddy, Matt, today, and hopefully be at school tomorrow. Thanks for your many messages, gifts, and offers to help us out. We are really hoping for a near-normal week this week. I am expecting a call to come in for a bone-scan and he will have labs drawn on Thursday to check his counts. We will have his labs done in Athens to avoid another trip to Atlanta. Please keep praying that the chemo is killing the cancer cells, and that Ryan is able to stay out of the hospital. He will have to be admitted for any fevers, and we don't want that. Love, Les, Missy, Heidi, Will, and SuperRyan