- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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2 more long days till we go and pick up Ryan. It has been incredibly hard not to hear from him all week. He was happy when we dropped him off. He was in the same cabin with 2 of the same counselors and some of the same boys. He was already checking out where Erika and the girls' cabin was so he could start plotting tricks on them. We have been able to see pictures of him on the web. You can visit http://www.campsunshine2007.shutterfly.com/
to see pictures. the password is camp and you have to scroll down to "jr. camp". It looks like Mark Richt and the Ga. Bulldogs visited Tuesday. We could see Ryan playing football with them. We have been trying to do some fun things today. Heidi and I went to a rally at Egleston on Tuesday to raise awareness for the Conquer Childhood Cancer Act. You can visit the Curesearch website (see link to left) and they have made it easy for you to write your congressman. Click on write a letter under Reach the Day. You just plug in your zip code. It is so easy. I understand that we have assurance from Saxby Chambliss and Johnny Isakson here in Ga. that they will vote for it, but we still need to contact our other congressmen and women to get their support. You can use this website no matter what state you live in, so please do it to get votes. The most exciting part of our visit to Egleston was that we got to meet Dr. Don Durden who is working on a new drug for NB that looks very promising. He was very nice and is going to do some research for us to help us figure out what we want to do next. Ryan starts round 4 of chemo on Monday and we will probably do at least 6 rounds which will likely get us to September. We are hoping to meet with Dr. Katzenstein next week. He was out of town this week. Heidi and Will are going to Lake Lanier for a day at the waterslides today. Ryan cannot go ride waterslides ( for fear of bacteria), so this is a good time for them to go and have fun. I have looked forward to Friday all week. My best-best girlfriend, Karen, has arranged for us to have a massage at Spa Sydell and then go to lunch. Who knows what else we may get into. Seems like we never go anywhere together that isn't kid-directed. We have had a good week, but we sure miss Ryan. Les' mom is planning a visit in a few weeks, so we are definitely looking forward to that. Thanks for checking in on Ryan, and please continue to pray for him and all the children in this fight. Please say a special prayer for Nathan
and his family. They needs prayers for strength, courage, and peace. Love, Les, Missy, Heidi, Will, and SuperRyan