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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Friday, July 06, 2007

 

Not a bad week.




Ryan is finishing up Round 4 today. My mom and dad took him so I could be at the pool with Heidi and Will this morning. He is going to get red blood after his chemo today. Maybe that will help keep us at home next week. We met with Dr. Katzenstein Thursday morning to talk about clinical trials and where to go from here. His advice was basically to keep going with the same meds we are getting. Switching to something else would mean taking drugs less studied and with fewer numbers to back it up. No need to do that now. We know these drugs are working so we will keep going with them. Bone marrow aspirates/biopsies are scheduled for July 19th. We probably won't repeat the MIBG for a couple of months. At some point, probably Spring, we will look at switching to something lighter and easier. Ryan's cousin, Nick, kept him company Monday and Tuesday. Will and Les went with him on Wednesday. He asked to be de-accessed and they picked up his buddy, Matt, on the way home. They got in a good swim before we went to Medieval Times. The kids had a great time and we got a great picture of all the boys. I will try and post it later. Matt kept him company yesterday, and his teacher came by the clinic for a visit. She had brought her new baby to the hospital for an appt. The baby, Adalynn, is doing great and surgeries are already scheduled in Sept. and Dec. to repair her lip and palate. Heidi and Will have their state-qualifying meet tomorrow so we will be heading to Clarkesville for that. We are getting really excited for Gramma's visit next week. She will be here on Wednesday, and Les' brother is flying in from Vegas for a weekend visit, too. We are crossing our fingers and toes that Ryan will stay fever-free after this round of chemo. Thanks for checking in on us. Please keep praying. Love, Les, Missy, Heidi, Will, and SuperRyan

# posted by Ryan @ 7/06/2007 11:09:00 AM
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