- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Time sure seems to pass slowly when you are wanting to get moving on your cancer attack plan! We have had a good last few days. Ryan seems to be feeling alright. He has had friends over playing just about everyday. We went and got his labs yesterday. His hemoglobin was 8.1 and platelets only 12,ooo. Both of these numbers are at transfusion levels. The clinic believes the numbers are on the way up. His white count has come up nicely already. We are just trying to keep him from getting bruised or cut. He has to get labs repeated on Thursday, and we expect that to show more of a rise. The needle-stick on Monday was a little traumatic. He was screaming at the nurse to "Take it out!!!!!" as she tried moving it around to get blood. We are going to start getting his labs done at our swim coach's clinic in Braselton instead of Athens. I think they take care of a lot more kids. We are still working on getting the slides of my biopsies sent to Emory. The hospital in Athens sent them to the dr's office in Athens instead of Emory, so there is a delay in that already. The option of a mastectomy has been taken off the table as the lymph node was positive. Looks like chemo for me. I almost think Ryan thinks this is great. He, of course, doesn't really understand it all, but I think it is somehow reassuring to him that this has happened to someone else in our family. He is already teasing me about having to take the liquid antibiotic that tastes bad! We are definitely keeping our chins up. This time is tough not doing anything. I know it will be better once we have a plan in place and can get started. Thank ya'll so much for your prayers for all of us. We feel so incredibly blessed to have so many that care for us. Love, Les, Missy, Heidi, Will, and SuperRyan