- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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We got some news on Ryan's scans late Friday. The CT looked good which we expected, but are always thankful for. The bone scan looked "stable, if not better". We haven't talked to the dr. yet, only Ryan's nurse, Erika. We have a few questions about the results, and should get some answers this week. He goes back tomorrow for chemo again. Hopefully, his platelets have come up enough to get started. He pulled a tooth in the car on Thursday, and I thought it would never stop bleeding. A few moments of real panic!! We all went to the Apalachee football game Friday night, and Ryan went home with his buddy, Max. Heidi played soccer Saturday morning in Athens. They won 9-0!! We left there and went straight to Will's first football game. He played well, and they won their game, too. It looks like Ryan has earned the spot at Water Boy. Thanks, Neil and Jenifer, for his t-shirt! It is amazing how comforting rituals like watching your kids play sports can be. Those events are our "normal" and we love them. We went to see the "Walking with Dinosaurs" show at Phillips Arena last night. Thank you, Camp Sunshine!! Will and Ryan really loved it, and I have to admit, it was pretty amazing seeing the huge dinosaurs walk around and look so real. My chemo on Monday has been delayed. Still having problems getting the oral chemo. The wonderful folks at Emory are hoping to get this worked out in a day or so. Everyone down there has been so nice, but I am ready to see some signs I am getting better. Thank you all for your prayers and encouragement for Ryan, myself, and our family. Please, also pray for our friend, Taylor. She is a beautiful (inside and out) 16 year old who has been fighting her very rare cancer for many years. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 9/09/2007 10:39:00 AM