Super Ryan

Where to begin from the last update? First, we had another incredible weekend at Camp Sunshine. Thank you, Michelle, Sally, Jeff, and all the volunteers who worked so hard to bring smiles to so many faces this past weekend. We got to play drums, paint coasters, make spider cookies, and play a few mean games of dodge-ball and kick-ball. Ryan was taking fish off the hooks for all the little kids on the dock. He thought he was something else. Heidi, Will, and Ryan played together so well all weekend. They even tried to all sleep in the same bed, which after 45 minutes and a few too many very loud giggles, had to be broken up. Hated to do it, but sleep is a precious commodity around our house.
On Friday, Les had a lengthy conversation with Dr. George about Ryan's eligibility for the MIBG treatment in Philadelphia. Dr. George learned that Ryan has had too much radiation to 1/3 of his liver and has already appealled to the folks in Philadelphia, but they won't let Ryan take part. So, we are back at square one. We are very disappointed with this news, but we just have to remain hopeful that this is not the path we are to take and that there is something that will work better somewhere else. We are contacting Dr. Maris in Phil. to get another opinion.
Today, Les is taking Ryan back to Scottish Rite for the 7th round of chemo. His counts were much improved on Thursday so we are expecting no delays. I will be at Emory getting my chemo at the same time. This will be my 4th of 8 rounds-half way!!
Please pray for no complications this week and next. A boring week of chemo would be nice. Love, Les, Missy, Heidi, Will, and SuperRyan