About Me
- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Tuesday, October 09, 2007
A few Camp pictures
Here are just a few we took this weekend at Family Camp. The first is a couple of Dads and their boys- two special Dads in Ryan's life, his Dad and Dr. Rapkin. Next is Will and Michelle after making spider cookies. Michelle is in charge of everyone having fun and she does a jam-up job of that. And last, but not least, is Heidi and her spider cookie. Fortunately, for ya'll, I managed to dodge the camera especially while eating the caramel apples. It wasn't pretty!
I'd love to correspond with you about ideas we've tossed around for Max and what we've chosen as his treatment plan. Nifurtimox is top of our list - I kid you not. Sam is NED, Max is just about there, Hector's LHD dropped from 1600 to 500 in two weeks after starting it... Nfx isn't a cure (there isn't one - yet!), but it's proving to be an extremely effective addition to the cyclo/topo. I also noticed Ryan's counts are having a hard time bouncing back - you can use Bromelain to assist platelets and Melatonin for his whites. Both are regular suppliments you can get at the store.
Ryan looks like a fun kid. What a crack-up in the photos you have posted. I love to see the spirit our kids embody... the NB just can't take that away.
Email me melissamikulak@yahoo.com if you like.
Hang in there,
Melissa Mikulak
Max's Mom
www.mikulak.org
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