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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Sunday, November 18, 2007


2 ways to help over the holidays

There are two great ways to help raise money for NB research over the Christmas holidays. Lunch for Life has started the Christmas Tree campaign already and Ryan got the first two ornaments on his tree this morning. There is a link on the left side of Ryan's site. If you use the code 26819, Ryan gets an extra ornament. All the money raised by Lunch for Life goes to find a cure for Neuroblastoma. Also, when you are doing your holiday shopping, register with i-give. There are tons of stores that will make donations when you make a purchase. You can choose your charity when you register. Aflac and the Rally Foundation are both charities you can select.
Ryan is doing great. Friday was incredibly long day. My parents took Ryan for his count check at SR and had to stay all day to get blood and platelets. No reaction today!! Hooray! Friday was also the Fall Jamboree at Ryan's school. He was so excited, but then so disappointed when he didn't leave the clinic till 7 pm! Traffic was terrible, but my dad took back roads and they made it to the school by 8:30, and we tore through it in 30 minutes!
So, for right now, the plan is to arrive at Egleston tomorrow at 7:15 for counts and a line placement. Ryan will be put to sleep to put the double lumen catheter in his chest. Please pray that his counts are high enough and that he tolerates the procedure. He hates waking up to the taste and smell of the anesthesia. They will not try to harvest tomorrow because of risk of infection. If his counts are right, he will go back on Tuesday for the harvest. Please pray for lots of stem cells. We don't have a plan for the stem cells right now, but having them could make Ryan eligible for a study that comes available later. Thanks for checking in on us and many, many thanks for your prayers. Love, Les, Missy, Heidi, Will, and SuperRyan

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