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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Tuesday, November 06, 2007


He is home!!

Ryan got to come home around lunch time today. He was so happy to see Heidi and Will and Mackie, too. His poor little mouth is bleeding on and off so we have to watch that pretty closely. His platelets are low. If he has any fever, he has to go straight back. He is going to stay home from school tomorrow just to keep an eye on his mouth and keep the mouth rinses going and to give his white count a chance to jump a little higher, too. So we are back on with the Neupogen shots. That was the best part of being in the hospital. He could get the Neupogen through his port without any pain. Please pray that Ryan has no more fever, that his mouth heals quickly, and that Neupogen is able to raise his counts enough to harvest a lot of stem cells. Love, Les, Missy, Heidi, Will, and SuperRyan

Guest Book:
Missy - see if your clinic nurses can be talked into giving you some dextrose. What we did is take the shot and squirt it into a 10 ml syringe and then fill it up the rest of the way with dextrose. We would then hook it up to Nathan's port and watch the clock and push it in very slowly over about 10 minutes. It was simple and painless. Since the staff knew us so well, they trusted we could do it right. I am sure your staff wouldtrust you - so I would at least ask if it is an option to the shots at home.
I agree with Susan. Neupogen can be given IV effectively. If your doctor won't go for it, you might ask to switch to neulasta, which was just as effective for Erin but comes as a single shot following chemo rather than a daily one.

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