- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Just a quick update-we don't have any results yet. We did get his catecholomines back and they are both in the normal range-hooray!!! Ryan had his MIBG injection on Tuesday and scan on Wednesday. The liver biopsy was Thursday morning. We were a little surprised (to say the least) when they told us he would have to lie still for 6 hours after he woke up. With good behavior (surprise!) we were able to cut that to 5 so we could head to my appt at Crawford Long. I really didn't learn anything and don't have surgery scheduled :( The Radiologist that did the liver biopsy did say that Ryan's gall bladder doesn't sit in the normal spot and that could be what we're seeing on the MIBG. Not that cancer could be in his gall bladder instead, but that the gall bladder excretes the radio-isotopes naturally. Ryan was in a lot of pain Thursday and early Friday, but started feeling better around lunchtime on Friday. I do want to thank our friend, Hannah who works for the CHOA Foundation raising the dollars it takes to keep the hospital running and beautiful. I ran into her in the lobby and she brought Ryan a fabulous gift to keep him distracted, busy, and very happy. That is exactly how I would like to spend my weekend. We took Les' parents to the Gladiators game last night, and Heidi has a basketball game this afternoon. We have sure been enjoying the 70 degree weather, but will likely be staying in as the temperatures drop this weekend. Thank you so much for your prayers and kind words of support. We have felt very uplifted during all this stress. Enjoy your weekend. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 12/15/2007 07:16:00 AM
