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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Wednesday, December 05, 2007


Lots to do

We sat down with Dr. George yesterday to discuss the requirements for starting ABT-751. Ryan will need to under go MIBG and CT scans, Echo, Liver biopsy or maybe partial resection where it has been lighting up the MIBG scan for ever, bone and marrow biopsy, lots more blood work and likely another round of chemo. There sooo are many hoops to jump through to begin a trial and it all has to happen in a very tight time frame. Then there is also the possibility that Neuroblastoma will not show up at all in any test after these last 11 rounds of chemo and Ryan will be declared NED ! That would be the greatest Christmas present we could receive, it's number one on our list. Either way it goes, it's still scary. The kids are so excited about their Grandma and Grandpa flying in next Monday, they can hardly wait. I guess they'll get to hang at Scottish during the days while Ryan tests. It's going to be busy! Happy holidays, Les, Missy, Heidi, Will and SuperRyan.

Guest Book:
I hope all of the testing went smoothly and you got the results you needed to start the new treatment plan. Ryan is a trooper and I stop by his website every morning to check for new updates. I hope your whole family has a blessed holiday.

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