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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Thursday, February 07, 2008


Good Check-ups

I wish I had a picture of Ryan playing soccer to post. I will try and get a good one next week. He started practice on Tuesday and on the way he said "wouldn't it be great if we got there and my coach was Coach Mark?" He seems to have a good coach, but, oh yes, it would be great if his coach were Coach Mark. He is so happy to be playing again and is already looking forward to swim season. He has two more days of chemo this round and then gets a week off. He goes back to the dr for a check-up in a couple of weeks.
I went to see my plastic surgeon, Dr. Losken, today. They took all the tape off my stitches and started filling the expander. It was weird that I could feel it in my elbow when the nurse accessed the port on the expander. I guess there is a nerve that connects the two. I can't believe it has been three weeks since my surgery. I still have one drain. He told me today to slow down so it would stop draining off so much fluid. Slowing down is hard for me. We have been having some warm days and it has been nice to get outside and walk just a bit. I really know what Ryan meant when he said he just wanted his life back. I feel the same way. I go back to Emory on Monday and hopefully, will start chemo. Sooner started, sooner finished. I don't know yet how much or for how long yet, but I'm sure I will learn all that on Monday. I am pretty sure I will be taking Doxorubicin and Cytoxan. Ryan has had both drugs and we are already aware of the side effects. We just have to forge ahead and get through it-and we will. Thanks for checking in on us and for your prayers, love, and support. Love, Les, Missy, Heidi, Will, and SuperRyan

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