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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Saturday, April 26, 2008


No plan yet.

I am so very tired, but I want to post before I go to bed. Our internet has been out and it appears the "chat" thingy is messed up. It has been a long week. We met with Dr. Marcus on Tuesday and Dr. George on Wednesday. We still don't have a plan, but hope to by this weekend. Dr. G. is going to call NY and talk to them for us to get some more information. Ryan has been feeling good. He even went to soccer practice Tuesday night. He has been taking the CRCT this week, and he and I are both glad it will be over on Monday. Today has been an awesome day. I took him and his buddies, Matt, Max, and Jeffrey to play lazer tag. They had a great time! They played at the house all afternoon and even jumped in the pool. They were the firsts of the summer-the bravest for sure! The water is so cold.
The nurse is coming Monday to access him and get his chemo started. We got his Dilantin completely changed over to Keppra. The Dilantin has a narrow therapeutic window, and Ryan never reached that level. He never had any problems in spite of it though, which makes us feel good. He was very irritable on the Keppra, and a quick email to Erika later, we are adding half a B-6 vitamin to see if it helps. I don't know if he was just excited about today's events or the meds, but he couldn't stop talking.
I went back to see the radiation oncologist for a CT. They will take the week to plan, and I go back next Friday for a dry run. I am supposed to officially start May 5. Looks like I will finish just in time for school to get out! Figures.
Thanks for checking in on Ryan. Please keep praying that he continues to feel good, that we choose the right treatment plan for him, and that the chemo gets rid of all the cancer and protects him. Love, Les, Missy, Heidi, Will, and SuperRyan

Guest Book:
Hello all,

Hope you all don't mind me stopping in and saying hi. I stumbled on your blog searching for family, parenting, and dad type blogs. It took a few hours for me to read your awesome blog. What a fine work it is too. Ryan's and your families journey had me smiling and weeping a few times. You all, especially Ryan, are wonderfully strong and positive.

I too have a nine year old son that is my life. Thank God he does not suffer from NB or anything like that, but enjoys life, just as much as Super Ryan does. I just know they would be thick as thieves if they lived close to each other and were friends.

We will put you in our prayers. I know Jeremy, my son, will. I plan on introducing him to Ryan in a way by showing him your blog.

My church does a lot of outreach. I think Childhood Cancer may be something I can get them interested in. I know I am and will be attempting to educate myself with the wonderful links you have up.

God bless you and your family. Keep strong and keep positive.
I'm praying hard those Yankee Drs. can help your team come up with the best plan for Ryan. I pray for ALL of you every day, that you continue to find strength, courage, humor and faith in spite of all you are facing.
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