- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Saturday, April 19, 2008
Way To Go, BES!
We had a bonfire last night and had some friends over. Ryan had a great time running around with Matt and Max. We have soccer today and a Relay dinner tonight. Hopefully, tomorrow we can just hang out and take it easy. Maybe take in some lazer tag. Please say prayers this week as we meet with Ryan's doctors. We meet with Dr. Marcus, the Radiation Oncologist on Tuesday and Dr. George on Wednesday. They have scheduled his next MRI for May 7th. I feel certain we will meet with Dr. Reissner afterwards to get results. Thank you for the prayers you have offered up for us. Love, Les, Missy, Heidi, Will, and SuperRyan
Thanks for your comment on Max's blog! We’ve been following Ryan for some time now. I really hope he’s doing good on the irino/temo combo. Is he doing the COG2 protocol (2 weeks on, 1 week off) or the MSK combo (1 week on, 2 weeks off)?
We’re on the COG2 protocol so we just finished week 2 of irino.
Unfortunately, we have terrible home care services in San Diego, so no home admin of IV chemo. Max usually starts with an empty stomach as he doesn’t eat a thing orally and gets all nutrition via g-tube. He’s been tolerating the chemo pretty well, but needs a rest after the second week of irino. On the off week we’re giving him rapamycin. We’re going to do this for two rounds, scan, then try a round of genzyme/velcade.
Best to you and Ryan!
www.Mikulak.com for updates on Max's cancer
www.MagicWater.org to support innovative neuroblastoma treatment