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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Thursday, May 08, 2008



Not the fun kind... Ryan's MRI yesterday showed noticeable shrinkage, 1/2 cm or so. That gamma knife is an awesome procedure. No one knows if it will ever go completely away or not. He has lost a 3" circle of hair just above his right ear but no radiation burn.
There is no standard therapy direction at this point so we are struggling through a couple of options. Full brain radiation or experimental antibodies directly injected into he cerebrospinal fluid. We are trying to weigh the benefits vs the side effects. The odds have never been on our side but now they can't get much worse. It is just such a hard time, he looks and feels great right now, but there is a monster hiding inside, somewhere, waiting. We do know we have to act but decisions get harder and harder. Pray for clarity and a happy healthy little boy we call Super Ryan. We thank you for that, Love, Les Missy, Heidi, Will and SuperRyan

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