- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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We have really enjoyed the weekend here at home. Today is our 18th wedding anniversary, and we had a nice quiet day with the kids. Ryan's buddy, Matt, and his sister and cousin Nick, spent the day with us around the pool. The nurse comes in the morning to access Ryan. His Temodar won't be in at Publix until around noon, which is a bummer. We can't get him started until the afternoon. He has less nausea (like none!) when he gets chemo early in the morning. We'll be able to back it up to early a.m. for the rest of the week. He wants to make sure he can swim in the swim-meet on Saturday morning. I guess we will be de-accessing him, which is a little unnerving (at least for me-probably not for Les). He had a great week last week. He didn't miss a bit of school. Friday was his Field Day which is always fun. The picture is from the Science Expo at school. His group did a very fitting experiment for little boys about producing gas! Only two more weeks of school!! Woo-hoo!!! Only three more weeks of radiation for me. Another woo-hoo!! That should be the end of my treatment. I still have some reconstructive surgery to go, but I will be so glad to be finished with all the treatment. We know that all of Ryan's info has been sent to Sloan so we are just waiting to hear back from them about him getting the 8H9 antibodies. The doctor that oversees that study is Dr. Kramer. She was in Japan last week presenting on this study at the Advances in Neuroblastoma Research (ANR) meeting. We are hopeful that we will get confirmation that he can participate and some sort of schedule for us to travel to NY. Please say prayers that all goes smoothly, and of course, that Ryan continues to feel well and his cancer dies, sleeps, how about just goes away! And please just pray for a cure for all cancers. Thanks for checking in on us. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 5/26/2008 08:24:00 PM
