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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Thursday, June 12, 2008


He has had some fun!

Ryan's easiest days in NY are done. Today will be a little tougher and tomorrow even tougher. His MIBG scan is this morning at 9:30. Please pray for a clear scan. He hasn't had one of these since December. After the scan he will be free until 5:00 when he has the MRI of the spine. I don't know if their machines are any different, but the spine MRI is a toughie. He has to lie motionless for about 45 minutes. Last time he had big crocodile tears the last few minutes and wanted to just stop.

When I talked to him last night he was bragging he had eaten snails. Yucch! He met Dr. Kramer yesterday. Ryan hates change-with a passion-so he wasn't real happy with Sloan. He refused to have his port accessed and instead opted for daily IVs. Who knows what is going on in his head. I'm betting he wished he could have taken Erika with him, and Dr. George. Dr. Kramer was wisely brief with him. Les said she was very upbeat and bubbly. My kind of girl!

They did all kinds of fun NY things yesterday: hailed a cab, went to the big FAO Schwartz, and took a boat tour around the Statue of Liberty. I think they are having lunch in Central Park today with Jon, the wonderful pilot who delivered them to Manhattan. They were finally able to meet Les' cousin, Christina, after their boat ride. I think they are seeing Lion King with her tonight. I am so thankful he has all these distractions. He is going to need them today and tomorrow. Les is looking into their flight home today. I hope they are able to come home tomorrow, but their last appt. is not until 4 and it is a scan that will last at least 45 minutes.

It is eerily quiet here at home. Heidi and Will are already at swim practice. I finished school yesterday and will be finished with radiation tomorrow. I have to go twice tomorrow, but know that I will be celebrating, if only in my head. We are all looking forward to the beach next week and seeing all our friends at the Lighthouse. It would be nice to have some good results to report. Please pray for that and for their safe return home, and for Ryan's patience and understanding the next couple of days. Thank ya'll so much for supporting us and loving us. We feel it and it lifts us up everyday. Love, Les, Missy, Heidi, Will, and SuperRyan

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