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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Friday, June 13, 2008

 

He is one mad kid!

He is so mad. He threatened to call the cops if Dr. Kramer tried to treat him! He says he is never going back. This is going to be really tough. Yesterday was really hard. When I talked to him this morning, he was walking to Sloan drinking his contrast. We didn't get any results of the MIBG yesterday. Les said he did great with the spine MRI. I know they had a great lunch with their new friend, Jon. I heard something about him winning $4 in a guessing game. They had to go back to Sloan after lunch and Ryan told his dad that he could go back, but just to give him cab fare and he was going to find Christina and have some fun. I can just see him ordering everyone around in NY.
Dr. Kramer is pretty much insisting on the whole brain radiation, so it looks like we'll have to do that first.
He loved the Lion King. Thank you, Christina. That was awesome. If I get any news today, I will post again. They are scheduled to fly home tomorrow at 10 "if there is no trouble with weather". Ryan also mentioned something about going back to FAO Schwarz today for a sword. :)
Love, Les, Missy, Heidi, Will, and SuperRyan

# posted by Ryan @ 6/13/2008 10:06:00 AM
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