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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Sunday, July 20, 2008

 

Keep your eyes and ears open

Tonight on 60 minutes there is a story on a little girl, Olivia, who is fighting NB. It should be very interesting.
The Conquer Childhood Cancer Act has now passed in the House and in the Senate, and is headed to the Oval Office for Bush's signature. I hope they find the $$ to finance it.

Ryan is still doing great. We have appts. on Tuesday with Dr. George and at the Winship to make his mask. He stayed with Matt yesterday instead of going to the swim meet. It was such a long day. We had to be there at 12:15, and Will swam his first event around 4:00. He swam an all-star time in long free and finished first in breast stroke. He was pretty happy about that and didn't even get mad when he got disqualified on his flip turn in the backstroke. His birthday party is later today. A photographer is coming around 4 today to take pictures of us for Woman's World magazine. Watch for the Sept. edition to see if any of our pics make it. They are doing a story on Ryan's friend, Jena.

One of our friends from family camp earned his angel wings this past week. Dustin Cobb was an amazing little boy who fought hard for a very long time. We were very saddened to hear about his passing. He doesn't live too far from us and was getting a new treatment in VT that seems to hold a lot of promise. His family could use your prayers and some caring words.

Thanks for checking in on us and for your many prayers for Ryan. Love, Les, Missy, Heidi, Will, and SuperRyan

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