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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Wednesday, July 23, 2008

 

Yesterday's appts. went well

Here is a picture of our little friend, Adalynn. She is just adorable. Her mom is Ryan's 3rd grade teacher. They are getting ready to move to PA, and we are going to miss them terribly. There is also a picture from yesterday of Ryan and our wonderful Dr. George. You might have seen his picture in Sunday's AJC. There was a very moving article about Tyler Copely. Tyler dropped the puck with Ryan last year at one of the Thrasher's games. Les took some pictures of Ryan with his mask, but I can't figure out how to post them. We'll get one up later. Things went well at Emory. We were initially thrown a curve with more radiation treatments than we had planned and the possibility of getting them twice a day (which would mean staying in Atlanta all day for a couple of weeks), but after Dr. Nadia consulted with the radiation oncologist in NY, we got it all settled to 12 treatments starting next Monday. They won't do a boost to the tumor site since he already had the gamma knife, but they will do radiation to his spine. Of course, we don't want to do anymore than we have to because of the potential side effects, but we want to be as aggressive as we can. It is a hard balance to achieve. We did a little shopping inbetween appts and picked up an American Idol video game.
We had a good visit to the clinic. Ryan's hgb. and white blood counts were really good. His platelets are still low at 66k, but high enough for chemo next week. We will do another round of irinotecan and temodar with the radiation. Please say prayers that he won't be sick. He has to be off chemo three weeks before we can start the antibodies in NY, so if everything goes as planned we could be back there the third week in August.
We are getting ready for his birthday weekend. We'll post pictures of that and hopefully of Heidi and Will picking up some medals at the state meet.
Thanks for keeping us in your prayers. Love, Les, Missy, Heidi, Will, and SuperRyan







# posted by Ryan @ 7/23/2008 07:53:00 AM
Guest Book:
We loved the picture of Ryan and his doctor! He looks like a champ to us!! That mask looks JUST like the one Matthew had for his cranial radiation! I hear they can make them look like Spiderman....you might ask if they can do that at your hospital!

Hang tough!
Nancy, Greg, Matthew, Logan and Brittany
Lighthouse 2007
# posted by Anonymous Anonymous : 3:20 PM
 
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