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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Saturday, August 30, 2008


Long overdue THANKS!!!

Thanks, Karen for the pictures below from Camp. Ryan is going back to the clinic on Tuesday to have his port flushed and for another set of blood counts. The plan right now is to start accutane, fondly referred to by us and a few others as craputane. When his platelets reach the magic number, we will head to Sloan.

I have a very long overdue huge thank you to the teachers and staff at Bethlehem School, and to Matt's mom and dad. Over $700 was raised at school in a single day back in the spring. Ryan's best buddy, Matt's mom and dad matched it. I sent it all in to CURE and filled out an application at Walmart to have them match the donation. I have waited and waited, and quite frankly, I'm over it. Who knows? Maybe they just send the donation directly to CURE, but I'm done. And so- thank you to everyone at school and to Scott and Christy for your generosity. Thank ya'll for caring so much for Ryan and for wanting to help find a cure.

Ryan is feeling good today. Thanks for checking in and for your prayers. Love, Les, Missy, Heidi, Will, and SuperRyan

Guest Book:
My name is Al Race and i would like to show you my personal experience with Accutane.

I have taken for 5 months.I am 18 years old. It was slightly helpful to me, and for that, it was worth it. I have one month yet to go. When I started, face was real bad. Plain ugly. Its definitely gotten better, but there are alot of small but noticable darkspots that just dont seem to fade, I’m hoping they will yet; I’ve heard many people see major improvement after they stop the drug. I hope that’s me. It’s helped me emotionally, because everyday I wake up and think 'I gotta take my accutane!' thinking it will help. And it has, even if its not completely gone. One thing I reccomend is swimming while on the drug. The combination of accutane and chlorine on your face will dry it out significantly and promote new skin growth. Its helped me alot; I try and swim almost every day!

Side Effects :
Lips were pretty damn dry. Always carry chapstick. My lips are out of shape towards the corners of my mouth, real screwed up, I dont know why. Other than that, nothin serious, maybe tiredeness, but hey-I’m a teenager. No noticibale mood changes or depression thats different from the norm, but like I said, I’m a teen. Occasional brief minor rash, a little sore back, but thats all for me.

Accutane Prescription Medication
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