- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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All has gone well today with the 3f8 injection. He got platelets again, but no reaction this time, thanks to pre-meds. An entire team came in and drew off some cerebro-spinal fluid, injected the antibodies, and flushed with his his own fluid. It might have taken 30 minutes start to finish. Ryan sat up in his bed eating Lay's potato chips the whole time. Then he finished off one of NY's great warm salty pretzels. It's been about an hour and a half, and no nausea or pain yet, but we don't want to jinx ourselves. We're still watching him closely and expecting anything can happen at any time. He will have a PET scan in about an hour then one 3 hours after that to see where the antibodies go and that they do disperse. He'll have another scan tomorrow around 11 and then maybe discharged back to the Ronald McDonald house. He is happy about that. We will be back again on Friday then fly out late afternoon. When Ryan's feeling good, we are all doing well! Les, Missy, Heidi, Will and SuperRyan