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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Friday, October 03, 2008


Schedule Confirmed

Ryan will have his MIBG scan done in Atlanta next week. The following week we will head to NY to have the remaining tests completed. The week after that we will run a test dose of the 3f8 antibodies. Then, finally, treatment begins.

MRI Spine Scan Tue, 10/14 @ 8:00am
CSF Flow Inj Wed, 10/15 @ 10:30am
CSF Flow Scan Wed, 10/15 @ 11:00am
CSF Flow Scan Wed, 10/15 @ 2:00pm (@4 hr scan)
MRI Brain Scan Thu, 10/16 @ 9:00am
CSF Flow Scan Thu, 10/16 @ 11:00am (@24 hour scan)
CT cap Thu, 10/16 @ TBD

Inpatient at Memorial Sloan,
10/22-24 3F8 inj Test

Inpatient at Memorial Sloan,
10/29-31 3F8 inj #1
11/05-07 3F8 inj #2
11/12-14 3F8 inj #3

6 week break for treatment in Atlanta

Inpatient at Memorial Sloan,
3F8 inj #4
3F8 inj #5

This is going to be a really tough schedule on Ryan. When you have to look ahead like this, it just so hard to imagine doing it. With the good Lord and great Doctors with us, we will come out the other side of this course, then begin to plan the next one. Ryan is the most incredible fighter, brother, son, comedian and hunter! you will ever meet. We are so unbelievably grateful to have him in our lives. Wish us strength, wisdom and patience. Les, Missy, Heidi, Will and SuperRyan.

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