- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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I had great plans to post with great pictures that "we made it!", but our pace just hasn't let me. And, just adding this one picture has taken forever. I will try and add more later. We took this one yesterday in Central Park. We got here safely on Monday and are settled in at the Ronald McDonald House. Tuesday at Sloan went pretty smoothly with a spine MRI (he has to lay completely still for an hour) and a CT. We met with the nurse practitioner who was really nice and didn't seem to mind a bit when Ryan wouldn't even peek from under his blanket. We managed to get a jogging stroller here at the R.M. House so he doesn't have to walk to the hospital, which is awesome! He looks pretty funny with his blanket draped over the entire thing. He is loving watching u-tube on Les' i-phone under his blanket. Today, they will access his Ommaya port and inject a radio-active tracer and then scan periodically to make sure it is dispersing the material like it should for the treatment. On Thursday, he has a brain MRI and a final nuclear scan then he'll be done until next Tuesday. We are making mental plans for when Heidi and Will get here on Saturday. He has a list of things he wants to show them, and I am dying to see the Statue of Libery. We'll only have a couple of days to take in as much as we can together. Ryan will have to be inpt. Tuesday night for the rest of our stay. We will update again when we have more information. Thank ya'll so much for your prayers for Ryan and our family. Your messages and your support give us much strength that we need. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 10/15/2008 08:11:00 AM
