- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Friday, December 05, 2008
TGIF!! Ryan has had a good week. He isn't going to school right now so we've gotten to spend a lot of time together. I really love the mornings getting to snuggle and not have to go out in the cold. The home school teacher starts next week. We had the radiation simulation today. They aren't used to kids so Ryan is something special (I already knew that!). It went pretty quick and we got a schedule set up for next week. We got labs done at Coach Gary's on Thursday.His wbc is 5.3. I can't remember the last time it was this high. His hgb is 11. Ditto on that. His platelets are only 16k which is typical for him now. Dr. G (and us) is a little worried to start chemo with plts being so low, so we are going to do accutane and zometa. We'll go to the clinic on Tuesday for a 30 minute infusion of the zometa. This drug is given to women with osteoporosis for bone loss. It has shown to work on bony disease. I got the same drug just before Thanksgiving. It can give you flu like symptoms the first time you take it (it did me). We'll also pick up a script for the accutane. We hate how it dries him out, but at least it isn't summertime. We're looking forward to the weekend with everyone at home. The Lighthouse Christmas party is Sunday and we can't wait to see friends old and new. Thanks for checking in on us. Please keep praying for Ryan to feel good and for his cancer to be gone! Love, Les, Missy, Heidi, Will, and SuperRyan