- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Les talked to Dr. Rapkin this afternoon and the word is his MRI's looked good. I felt they would be, but there is always that doubt. That terrible, terrible doubt! These results will be added to his treatment history and all of that will be sent to St. Judes to see about the 3f8 clinical trial there. We need to do something to try and protect the rest of his body. If only it worked like the intrathecal antibodies do. Ryan asked me this morning if I thought he would ever get his port out. He really wants his Ommaya port out, and I really don't know why he can't have it removed. You really can't see it with his hair having grown in, but we both know it's there. Tomorrow night he is spending the night at the Atlanta Zoo with Camp Sunshine. I'm glad it has warmed up a bit. He won't be sleeping outside, but they will be walking around outside looking at the animals. Heidi is off to a girlfriend's sleep over. It's her sweet 16. I can't believe our girl will be 16 next month. She's doing a great job driving. After sitting at the soccer field for an hour today waiting for her to finish, I am ready for her to start driving herself. Will has a basketball game tomorrow. His team is doing pretty good. I think they've only lost one game and that team was really tall! Well, thanks for checking in on us and thanks for your many prayers for Ryan. Please pray for a cure for all cancers soon. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 1/23/2009 11:08:00 PM
