- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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We played phone tag a bit today with the clinic. Les talked to Dr. G. just before meeting us at Asia Cafe for mine and Ryan's favorite sizzling rice soup. There was more uptake in Ryan's skeleton. I'm sure we'll be scheduling bone marrows next week. Our options at this point are ABT-751 which is a phase 2 study, or the Nifurtimox. I know lots of patients (and mommys and daddys) love Dr. Sholler in Vermont who does the Nifurtimox. We want something that will work fast to stop this beast, but we have to be very careful about his marrow functioning. His marrow is very tired and beat down and doesn't rebound well from hard chemo. We have no stem cells to rescue him. The good news was that there weren't any tumors. We are very disappointed, but certainly not surprised. We knew the pain was there for a reason. So please join us as we pray for our SuperRyan. There are so many things he should be doing besides this! We need prayers that treatment will move quickly and that he will once again respond positively and his marrows will stand up to what the chemo doles out. Love ya'll, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 2/26/2009 09:00:00 PM
