Super Ryan

Poor Ryan started throwing up last night-from the anesthesia, I'm sure- and woke up throwing up this morning. He couldn't keep water down and got sick just thinking about taking nausea meds. I called Egleston and we went down for IV zofran and red blood. Hopefully, the nausea won't return, but now we've got zofran that melts on your tongue, if we need it. The bad news today is that Ryan bone marrow aspirates came back positive and ABT-751 won't take care of that. Les talked to Dr. George and the plan is to start Irinotecan and Temodar at home tomorrow. He responded well to these drugs before so we're hopeful they will knock it back down. They will do 2 rounds and then re-scan. Please, please pray this works. Ryan was so upset today when I told him we had to leave his port accessed. He doesn't understand why and we're going to have to tell him that his cancer is back again. We were really hoping that with ABT-751 being all oral, we could get by with just telling him this was his new pain medicine. That's not gonna work now. He did get a pain patch yesterday which is working good. He actually asked Dr. Katzenstein if it was something he had seen on TV and was just trying out on him. Where does he get that?? We were so glad that Dawn was there today. She came and visited him a couple times and I know that made him feel better. Will went with us so we could do some of his school work. The zofran we got for him worked good and he actually ate some lunch and dinner! He's still having a hard time getting around and has pain in his arms, hands, legs, and feet. Hopefully, we are another day closer to the end of HSP! Thanks so much for your prayers for all of us. Hugs to all of you! Love, Les, Missy, Heidi, Will, and SuperRyan