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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Tuesday, March 03, 2009


Day one ABT study

Long day at Egleston. We arrived early for labs, meeting with Dr's, echo-cardio and CT Scans. The plan was to get this out of the way and start chemo on Thursday. The first day of ABT-751 will take all day. The problem was, the blood came back low. Lower than expected. The study requires only 25K platelets to begin and Ryan came in today at only 18K. Normal range is 175K - 400K. After Ryan's CT, we went back over to the clinic to draw a little more blood and keep our fingers crossed that he made 7K more during our stay there ! We are still scheduled for all day Thursday but we may be getting blood and platelets instead of Chemo. If that is the case, Chemo will be pushed back to next week. Not what we wanted.
Missy took Will back to the Dr. this afternoon because he has been getting sick everyday. It is just part of the process of working though it. I think he looks a little better. Thank you for sending all of the notes and prayers to our family. Les, Missy, Heidi, Will and SuperRyan

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