- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Our schedule got a little off yesterday when they bumped up my appt at Emory, but my dad came through for us as he always does and took Ryan to see Dr. George. Sounded like the usual upbeat day from just the email we got back from Dr. G. We have been a little concerned with some bumps on Ryan's head just over where he had the Gamma Knife. We had emailed him with our questions, and we all think it is the titanium screws possibly working their way out. We're going to watch it for now, but Ryan was ordering himself a CT scan for this morning (that just happened to fall at the exact time his home-bound teacher would be here, Sorry Mrs. Jill!). His counts are still pretty low so we're going to recheck them on Monday, and probably move ahead as scheduled regardless. Can't give the *&%$#ing NB time to gather strength. Ryan apparently had a conversation about not getting accessed for his chemo, so we're looking into taking it by mouth. I'm gonna put a question out on the list-serv just to see if anybody has any experience with that. Otherwise things around here are rolling on. Will did go to soccer practice on Monday and had a good little work out, but was pretty sore today. I'm worried his heart just isn't it right now. We'll just have to see. Again, day by day! His spring formal for Perfectly Polished is this weekend, and I am just trying to wrap my head around all that that will entail. It will be a little bit easier, just picking up his tux (tails, this year! Won't he look sharp!) and not worrying with Heidi's dress, shoes, hair, makeup, etc. etc.etc.! The kids are out of school on Friday for a workday. Who knows if Heidi will get her driver's license or not this weekend. We've moved her appt. back the last couple of Fridays cause she can't get all the paperwork together and get the class finished. She's had lots of homework, and she doesn't get home till almost 6 everyday after soccer. They had a game Monday night way above Gainesville, but lost. I felt bad for them. They beat Buford Saturday afternoon which was a nice win for them. Anyway, thanks for your thoughts and prayers. Please pray for Ryan's counts to rise. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 3/25/2009 02:15:00 AM
