- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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I think we got the most snow (6-7 inches of real snow, not ice)I've ever seen here. The kids loved it. We lost power around 6:00 last night, but somewhere around 11:00 the overhead light came on and woke me up. It never got really cold in the house, just really dark.
We had a great visit at Egleston today. Dr. Katzenstein is always so nice and is just great with Ryan. He told us about several studies going on now and we all agreed that ABT-751 is the way we want to go. They will scan after every other round so I'm glad we'll be keeping a close eye on him. He is having bone marrows, an ECHO, and a CT tomorrow and will be able to start on Thursday. He's having significantly more pain today. I had promised him a stop at Toys R Us last week after his MIBG, but with the lateness of the hour we skipped it. I hated to leave Will as he started throwing up today, but Ryan really needed a distraction, and God willing, Will will be better soon. The distraction worked for about an hour. We picked up a play house that we really don't even know he can stand up in. He envisions hiding inside it and shooting Will with his paintball or airsoft gun through the window. That, I would love to see! I feel just so terrible for Will. He is having a hard time managing this illness. His stomach hurts, his arms hurt, his back hurts. He was supposed to go back to the dr. today, but their office was closed due to the snow. Hopefully, he'll see him tomorrow and he can provide some relief for his tummy. I hate feeling so helpless. Please pray that Will's discomfort will subside quickly and he will be back to his old self again very soon, and please pray that Ryan will be able to get the ABT-751, that it will destroy his disease, and that his marrows will hold up. Thank ya'll so very much for your prayers, love, and support. Wer'e so glad ya'll are on this journey with us. Love, Les, Missy, Heidi, Will, and SuperRyan
# posted by Ryan @ 3/02/2009 06:35:00 PM
