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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Thursday, April 30, 2009

 

The right medicine

The right medicine is what we have found. We have substituted his nasty, make me mean, Keppra, with Trileptal, another anti seizure drug. This morning he is much more agreeable ! even though at this very moment we are still at the hospital. We moved him on to 50ml Fentanyl patch for 24hr medication and he gets Toradol every 6 hours on top. In short, he is feeling much improved this morning !!! He got out of bed at 7 and started packing. The first time he has walked since we checked in. Yesterday, you couldn't even touch his legs. He has ordered breakfast and is patiently waiting. It is sooo good to see him feeling better.
Missy has gone to Emory with her friend Karen for Chemo so we likely won't see her until this afternoon. She spoke with Heidi and Will last night but we won't be discussing this with Ryan. He is too stressed and his mood needs to get back to his normal, lighthearted and carefree, funny self. Thank you for all the thoughts and prayers that been lifting us up. Les, Missy, Heidi, Will and SuperRyan

# posted by Ryan @ 4/30/2009 08:16:00 AM
Guest Book:
I don't know you, but a friend of mine referred me to your blog. We have watched our granddaughter (14 month old, Lila) go through 2 malignant brain tumors, 8 surgeries, 6 months of high-dose chemo and a stem cell transplant over the last 11 months. If someone were to ask me what I have learned in that time, I would have to say that every day, every hour with our wonderful baby is a gift. I'm sure you feel that way about Ryan. What a valiant little man he is!!! the prayers of so many friends have bouyed us up, and my own personal prayers have given me peace. peace in knowing that God's will is better for Lila than mine. My heart aches for you. I know a small bit of the pain you are in. Ryan and your family will be in my prayers.
# posted by Anonymous Julie Howington : 9:32 AM
 
Oh no...this is just devastating news. I've been following Ryan's blog for so long...probably four years I suppose but I didn't think until now that I was able to post a message. I'm so sad to hear that he's out of treatment options. SO unfair. Damn cancer.

Ryan, you hang in there buddy. I'll never stop praying for your miracle. I'm praying for your strength AND strength for all of the Morgans.

Always in my thoughts...
Abbie
DSM, IA
# posted by Anonymous Anonymous : 11:28 AM
 
Hi Sweet Morgan Family. All of our thoughts and prayers are with you guys! With love, The Baker
# posted by Anonymous Leslie Baker : 12:10 PM
 
I am so sorry to hear that Ryan is having a rough time, and that there are no treatment options for him. He is in my thoughts and prayers. I hope that he is pain free and able to have some fun. All the best.
# posted by Blogger Robin : 2:09 PM
 
Hello Morgan family
You are all in my prayers. I have been following Ryan's story and was shocked to hear that there were NO more treatments available to him. Ryan, I am thinking of you and praying for you everyday. I hope you don't have to experience any more pain.

Keeping you in my prayers,
Kathryn
# posted by Blogger ktrierson : 3:35 PM
 
Your journal entries (on both pages) leave me speechless. I am not quite sure how a family is supposed to carry such a heavy load.

I guess the answer to that is that you carry it with the help of the hundreds of friends who pray for you and care for you. You carry it with the help of a load-carrying God.

My heart is with you all today.

Becky Smith
# posted by Blogger Unknown : 8:14 AM
 
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