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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Tuesday, April 28, 2009


Ryan is "fit to be tied"

Nothing is going his way today. First the Neurological team has slapped him back on Keppra and B1 for seizure prevention. He adamantly denies ever having one and is positive there isn't one in his future. He has let everyone here know, he is here for "PAIN, NOT SEIZURES !!" We made it through his Nuclear Bone Scan. He did sooo well staying perfectly still even though we can't eliminate all the pain. I have been doing my best to convince him he WILL be doing the MRI at 5. This has been difficult to say the least. Now Dr. George comes in, one hour before the MRI and tells us we are not going home ! He has assured us that we will be first on the checkout list in the morning. Can you imagine the state of his PO'd-ness after that! (that damn Keppra doesn't help either).
No results back yet from the bone scan but I could see it was not good. Dr. George is hoping to have both scan results first thing in the morning. Please send Ryan the strength to just get him through tonight and him finally getting home should carry him on tomorrow. Oh how I wish I had some good news, just once. Ryan has so many friends that care so much about him out there, for that, we are very thankful. Sincerely, Les Missy, Heidi, Will and SuperRyan

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