- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above.
Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
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Thank you Erin for providing our friends and families a "real time" update first thing this morning. Things were moving so fast down here at Scottish Rite.
The crazy thing is, I would have normally waited to take Ryan to the clinic until after 8am. This saves Ryan all the hassles that the emergency team put him through. Today though, something just made me say, "we'd better go now" 3am. What luck to be in Emergency when his seizure happened.
Nothing seemed to be out of the standard routine. We were in a dark room and it appeared Ryan began to stretch and turn to look at me. His eyes were open so wide and I made a quick quip. After a couple seconds of processing and I realized the hollow look in his stare. I hit the call button and opened the door yelling code blue. A four person staff was in the room, working in under 10 seconds. It is scary to be there and almost as scary reliving it right now. The seizure and morphine combined to put him out for a few hours of much needed rest. Missy made her way down to the hospital before 9am. All the tests seem to show stable signs. He will start back on the anti seizure medicine, Keppra. He is in incredible pain in all his major muscle groups, a pain that morphine hardly eases. He has it every 4 hours. Kristen Connor popped in to see if there was anything she could do , and Smith and Julie stopped by to help cheer him up. They ended up driving Missy and her car home tonight, as Missy is hardly doing much better than Ryan. We are hoping to be out tomorrow and back at home, safe and sound. Thank you all for your kind words, thoughts and prayers. Sincerely, Les, Missy, Hedi, Will and SuperRyan.
# posted by Ryan @ 4/27/2009 06:45:00 PM
