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Location: Athens, Ga, United States

Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.

Sunday, May 10, 2009


Happy Mothers Day !

Ryan called Missy first thing this morning to wish her a Happy Mothers Day. He really misses her. Just 2 more days !
We were getting ready to head out for breakfast when Ryan caught a glimpse of all his pills lined up as usual and burst into tears. He told me his life is crappy, it's all hospitals and pills. He has been fighting this for half his life. He feels shaky inside, anxious. So we rocked and talked for a while, tears still streaming down his cheeks. Then I realized that his 3 day Fentanyl is out and he is in withdrawals ! It has happened once before. We decided not to put a new one on and try to stay busy to hopefully keep his mind off of it. I already see a noticeable dip in his leg pain ! If we can stay off the Fentanyl, the next step is to eliminate the Morphine. That would be awesome. Narcotics quite simply change a persons character. I think the Nifurtimox is somewhat similar (neurologically) but at the moment it just feels to me, and Ryan, we're piling on the meds.
We just want to see him happy and healthy once again. With God's good grace along with caring Doctors with new medicine, we might just get there. That will be a great day.
So hears to mothers (and fathers) who are fortunate enough to have been given the responsibility to look after the most precious gift we have been given. Happy Mothers Day. Les, Missy, Heidi, Will and SuperRyan

Guest Book:
I so totally understand the frustration and also the perils of detoxing off the pain meds. I'm glad your there for the requisite hugging, cuddling, and rocking, even for your big guy.

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