- Name: Ryan
- Location: Athens, Ga, United States
Our son Ryan was diagnosed with stage 4 Neuroblastoma in 2004. In 2007, my wife Missy was diagnosed with stage 2 triple negative breast cancer. On July 8th, 2009, Missy lost her battle to this horrible disease. 2 days later, on July 10th, Ryan also lost his. Together forever, they both watch over our family now from the heavens above. Below is our families journey through Ryan's treatments, along with the joy and laughter we tried to instill into our daily lives. Those days helped us all cope with the pain and suffering that comes with cancer and it's deadly treatments. Both Missy and Ryan endured high doses of chemo, radiation and surgeries. Over 150 nights spent in the hospital and many, many more days. More transfusions than I could count. Yet both Missy and Ryan took on each day with a positive attitude and warm smile for all their friends. We miss them terribly. They will always be a shining light in our lives.
Friday, July 10, 2009
Missy is holding one of her babies...
I can only say that Missy was there to truely welcome Ryan to his new home, where she will hold and cuddle him.
Covering you in constant prayer.
All our love,
I don't have a single favorite memory of Missy. I have many. She was one of the three NB moms whose unsolicited advice and encouragement I always was happy to receive (other two being Vickie B and Donna L). I hope you don't mind, but I posted some of those emails and blog comments below.
what a beautiful face, a beautiful spirit. We think of you everyday and pray for your strength.
Just wanted you guys to know you have been on my mind. It is so painful to think of how much you must miss Max. I wish there were someway to relieve that. We are praying for you to be able to stay as strong today as you have been the last three years.
Hi Andy and Melis, Just checking on you guys this morning. Max is getting the same chemo as Ryan and they let us do it all at home. The visiting nurse comes the first day and accesses his port. sometimes she brings the irinotecan with her and sometimes they deliver it separately. anyway, it comes in 5 bulbs, one for each day and we keep it in the fridge. I don't know the physics of the bulb, but we just hook it up to his line and it pumps in over an hour. his temodar is oral, which I think it always is. you might ask if ya'll could do the same so Max doesn't have to go to the clinc. I know they have onemore kid doing this here at CHOA. We are praying for ya'll.
Have a great Sunday,
Hi Andy and Melis, the new pics of Max getting accessed just broke my heart. I'm sure you're not short on suggestions, and I hesitate to make one, but-- If Max is only having a blood draw could he just have an arm stick? Ryan always prefers this to accessing his port. As a matter of fact, a week ago at the clinic he insisted on a finger stick, and our poor nurse just pumped and pumped his finger to get enough. Ryan's platelets are slow to respond, too and I have had the same sorts of things on my mind as well. I hope you will post the answers you get from your docs. we are praying his catecholomines drop and he gets a break. take care-
Our son, Ryan, just started the irinotecan and temodar. We go to the clinic the first day and a nurse comes out the next four to give it to him at home. He did great with that. It only works because he doesn't need all the hydration that usually comes with the chemo. The iri. only runs an hour and the tem. is oral. Could that work for ya'll so Max doesn't have to go to the clinic? Also, Ryan does better when he starts with an empty stomach. He had no nausea on those days. Good luck with it!
Hugs, and Hugs, and Hugs from Regina, Saskatchewan.
Love your Canadian cousins,
Janet and Doug
~Kathy in Richardson, Texas
I know Missy was waiting with arms wide open while Ryan ran full speed into them.
Love in Christ,
Cole’s (Caring Openly, Loving Eternally) prayer team
I pray for your family.
C.O.L.E. Prayer Team
Perth, Western Australia
In Deepest Sympathy & Very Sincerely, Sara Maley "Sam's Gram"
My heart hurts for you. Please know that I am praying for your strength. Strength in understanding. Strength in coping. Strength for the three of you to continue to hold each other up when you think you have nothing left. I'm so, so very sorry.
Always in my thoughts...
I haven't forgot the mass cards for you (Missy, Ryan). I am trying to choose which one to use for Ryan. Also I have had 2 Migranies since the passing. And i am wondering if i will be able to continue getting news on how you all are without Missy, Ryan.
Hopefully The Wake And The Furnal Was A Bit Of Happy Times. But I Know It Hurt To See Them Together In Each Casket. Hopefully Ryan Had A Smile On His Face. Along With Missy. I Am Sorry That I Wasn't Able To Be There With You During The 2 Days. But Please Know I Wanted To Be With All My Love.
I Do Hope You Will Continue With The Site. Please Know This I Have Always Prayed For The Whole Family. I Wished I Got To Meet Missy, Ryan, You, Heidi And Will. But I Never Got To. So I Will Try To Send A Picture Of Me Sometime Soon.
Love As A Friend Forever. And With All My Prayers To You, I Also Love You As A Friend. Thanks For Talking To Me That One Night.
Karen Bedford Smith